Aa
marfan syndrome
So I have marfan syndrome which makes me a high risk mom. Here is a brief explanation of Marfan's syndrome since its not very common; it affects all the connective tissues in my body most importantly my blood vessels and more specifically my aorta. During childbirth my aorta is at risk of tearing which is potentially fatal and for the the birth of my first I had to vaginally deliver in the cardiac ICU in case they had to do surgery. They didn't do a c-section because that was potentially more dangerous but any way... I had a crazy birthing experience that I would have to write a small book to explain. I'm just curious if there are other moms out there that have Marfan's and what you had to/ have to go through in your pregnancy journey? Or if you know of someone that is in the same boat?
Yeah and the doctors make it even worse.
That sounds a little scary.
This I know, just really over the top delivery scenarios.
No but im an echo tech so I know about it. You just have alot of precautions but can still have healthy pregnancies
Apparently its too rare...
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