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CAN A LONG HISTORY OF HSV, CAUSE HPV & UTERINE CANCER?
Hello,
I am a 51 yr old female, who was recently diagnosed with hsv 1&2 as well as with hpv (epithelial cell
abnormality)
I was treated for venereal warts when I was in my mid-twenties. And for the last 10 to 11 years, I have been
constantly having brake outs on my L buttock and on my head (scalf). Herpes was never treated up until April 2008, when it was diagnoses. My hsv symptoms are very strong and dissabling.
What can I expect? Am I at risk for encephalitis?
What is the most agressive treatment for my condition?
Thanks in advance for your answer,
Venus2000
I am a 51 yr old female, who was recently diagnosed with hsv 1&2 as well as with hpv (epithelial cell
abnormality)
I was treated for venereal warts when I was in my mid-twenties. And for the last 10 to 11 years, I have been
constantly having brake outs on my L buttock and on my head (scalf). Herpes was never treated up until April 2008, when it was diagnoses. My hsv symptoms are very strong and dissabling.
What can I expect? Am I at risk for encephalitis?
What is the most agressive treatment for my condition?
Thanks in advance for your answer,
Venus2000
If you had hse, you wouldn't be able to sit here and post to the board - you wouldn't be of sound mind. It's not anything like what you have going on. A Ct scan or a MRI would be the preferred tests for something like that of which I believe you've already had correct?
I also wouldn't continue to follow up on most of this with the ENT doctor - I'd follow up with a neurologist as well as a rheumatologist along with your regular provider who can coordinate all your care and help to keep track of who's telling you what.
I'm glad my explanation was able to help you better understand a little of this. I know it can get a tad complicated when it's more than the common cold sore on the lip area and typical genital recurrences.
I see you also have tried to post to the std expert's board - I"m not sure they will be able to tell you much more than I have either. Your case is complex and not something that can really be dealt with online by strangers who haven't examined you or read thru your extensive medical charts on what's been done so far. HHH/EWH mostly deal with the std part of it of which your case is more than :(
grace
I also wouldn't continue to follow up on most of this with the ENT doctor - I'd follow up with a neurologist as well as a rheumatologist along with your regular provider who can coordinate all your care and help to keep track of who's telling you what.
I'm glad my explanation was able to help you better understand a little of this. I know it can get a tad complicated when it's more than the common cold sore on the lip area and typical genital recurrences.
I see you also have tried to post to the std expert's board - I"m not sure they will be able to tell you much more than I have either. Your case is complex and not something that can really be dealt with online by strangers who haven't examined you or read thru your extensive medical charts on what's been done so far. HHH/EWH mostly deal with the std part of it of which your case is more than :(
grace
A "self-diagnosis" of encephalitis is worthless. Maybe stop going on line looking for "matching symptoms" and work with a provider. A neurologist saying nothing is wrong, even after "40 blood tests" is good news, don't you think? You also sound like you might be a bit of a hypochondriac.
Grace,
Thank you so much. Not only for your honesty, but because you just helped me again by giving me that information.
I have been using Google to get information that match my symptoms.
I just emailed my ENT Dr. asking him where can I go for an HSE test. My symptoms match those of that disease. I hope I haven't developed that, but there is a posibily, since I have HSV1 and 2 untreated for such a long time. And because of the big episode I told you in 2005. All of it put together makes me believe that I might have developed HSE.
You're right when you say I have other things going on. I am going through menopause. However the symptoms of menopause, do very little to me compared to those of HSV.
I still don't know what igm is, and why I shouldn't have been drawn it. The GYN just said I was active. She didn't mentioned igm.
What is igm?
Thanks,
Venus
Thank you so much. Not only for your honesty, but because you just helped me again by giving me that information.
I have been using Google to get information that match my symptoms.
I just emailed my ENT Dr. asking him where can I go for an HSE test. My symptoms match those of that disease. I hope I haven't developed that, but there is a posibily, since I have HSV1 and 2 untreated for such a long time. And because of the big episode I told you in 2005. All of it put together makes me believe that I might have developed HSE.
You're right when you say I have other things going on. I am going through menopause. However the symptoms of menopause, do very little to me compared to those of HSV.
I still don't know what igm is, and why I shouldn't have been drawn it. The GYN just said I was active. She didn't mentioned igm.
What is igm?
Thanks,
Venus
I'm going to be very honest venus - this is far too complicated for a forum like this. You have a lot going on, of which herpes is just a teeny part of it. We can help with the basic herpes questions but most of your issues are too complicated for this forum :( Please just keep that in mind. I really wish I could help you more because it sounds like you aren't really getting this all explained very well from your providers but there's only so much we can do here on the board.
Herpes doesn't "spread" just because you didn't treat it. The vast majority of folks who have herpes don't treat it. I'm going to assume that it's hsv1 that is the issue in your ear area ( that's if it was cultured as hsv and not as zsv aka herpes zoster aka shingles ). The hsv1 oral infections typically stick around the chin, mouth, nose area but sometimes they do take a wild turn and end up in odder places like the ears or forehead. It's not really the virus "spreading" in the way we tend to think of it as spreading ( as in you have it on your mouth and then touch your ear so that you spread it there type thinking ) but just the way the virus can act sometimes. It "hides" in the trigeminal nerve ganglia and when it reactivates it can go down any part of those nerves to cause symptoms. If you google the trigeminal nerve ganglia - you'll find pictures of where it goes and what parts of the face it supplies. the ear is in that area - just an odd place for recurrences to happen. It would be the hsv1 going on in the facial area and the hsv2 causing the buttocks lesions most likely. You are + for both. The igm test should've never been drawn on you and you can disregard its results. When you were told that a + igm test means the virus is currently active - that's not accurate and shouldn't have been said to you.
I still maintain that you have far more than just the herpes infection from hell going on. I hope your doctors are able to figure out what is all going on for you. I know it's frustrating but I"d just keep going back to them whenever you have any symptoms. If the valtrex isn't doing it for you - I'd ask to try famvir instead and see if you get better relief on that. If you are still having symptoms while on suppressive therapy - that's a good indicator that something more than herpes is going on too.
grace
Herpes doesn't "spread" just because you didn't treat it. The vast majority of folks who have herpes don't treat it. I'm going to assume that it's hsv1 that is the issue in your ear area ( that's if it was cultured as hsv and not as zsv aka herpes zoster aka shingles ). The hsv1 oral infections typically stick around the chin, mouth, nose area but sometimes they do take a wild turn and end up in odder places like the ears or forehead. It's not really the virus "spreading" in the way we tend to think of it as spreading ( as in you have it on your mouth and then touch your ear so that you spread it there type thinking ) but just the way the virus can act sometimes. It "hides" in the trigeminal nerve ganglia and when it reactivates it can go down any part of those nerves to cause symptoms. If you google the trigeminal nerve ganglia - you'll find pictures of where it goes and what parts of the face it supplies. the ear is in that area - just an odd place for recurrences to happen. It would be the hsv1 going on in the facial area and the hsv2 causing the buttocks lesions most likely. You are + for both. The igm test should've never been drawn on you and you can disregard its results. When you were told that a + igm test means the virus is currently active - that's not accurate and shouldn't have been said to you.
I still maintain that you have far more than just the herpes infection from hell going on. I hope your doctors are able to figure out what is all going on for you. I know it's frustrating but I"d just keep going back to them whenever you have any symptoms. If the valtrex isn't doing it for you - I'd ask to try famvir instead and see if you get better relief on that. If you are still having symptoms while on suppressive therapy - that's a good indicator that something more than herpes is going on too.
grace
Dr's have been trying to figure out what's wrong. I have seen Dr's about it, from A to Z.
What happened is that they've checked me for everything, except for Herpes. They, like you, did not believe me that I had a lession inside my left ear. I said on my story, that I had to diagnosed and treat myself, before I was tested for herpes.
Because of that my HSV problem went to far. It has spread far too much. They have me on treatment now, and all of my symptoms have disminished, but I still get brake outs (even when I'm taking 1000 mg of Valtrex a day.
I believe I should be on a stronger treatment, which is what I questioned the forum about.
I also wanted to know what those #s (the ones on my diagnosis)meant.
My skin Dr. took a culture from one of my rashes on the left side of my head, and it came out positive (proving that I have a lession on my head as well) All the symptoms I have now, are due to the postherpedic neuralgia that follows an HSV outbreak.
My GYN is the one who tested me last, and said that I was active.
Out of so many Dr's that I have seen since 2005, no one believed that I have a herpes lession in my middle ear, until now when it was proved, since I requested to be tested.
Even when I told them time after time about the terrible itch and burning heat inside my ear. And even when the neurologist found everything negative, except for 'something' (no specific) inside my left ear.
If they would have believed me and test me 2 or 3 years ago, the disease wouldn't have spread and progressed the way it has.
I'm in this forum to learn more about this disease so that I can help myself.
What happened is that they've checked me for everything, except for Herpes. They, like you, did not believe me that I had a lession inside my left ear. I said on my story, that I had to diagnosed and treat myself, before I was tested for herpes.
Because of that my HSV problem went to far. It has spread far too much. They have me on treatment now, and all of my symptoms have disminished, but I still get brake outs (even when I'm taking 1000 mg of Valtrex a day.
I believe I should be on a stronger treatment, which is what I questioned the forum about.
I also wanted to know what those #s (the ones on my diagnosis)meant.
My skin Dr. took a culture from one of my rashes on the left side of my head, and it came out positive (proving that I have a lession on my head as well) All the symptoms I have now, are due to the postherpedic neuralgia that follows an HSV outbreak.
My GYN is the one who tested me last, and said that I was active.
Out of so many Dr's that I have seen since 2005, no one believed that I have a herpes lession in my middle ear, until now when it was proved, since I requested to be tested.
Even when I told them time after time about the terrible itch and burning heat inside my ear. And even when the neurologist found everything negative, except for 'something' (no specific) inside my left ear.
If they would have believed me and test me 2 or 3 years ago, the disease wouldn't have spread and progressed the way it has.
I'm in this forum to learn more about this disease so that I can help myself.
It's not likely that you get herpes ob's in your ear.
I'd continue follow up with your specialists because obviously you have a lot going on and they just haven't put it all together yet from the sounds of it.
I'm guessing your doc said the virus was active due to the + igm - that's not really helpful to say that. In fact the igm should've never been drawn on you at all.
Hopefully being on suppressive therapy with valtrex keeps the herpes part of everything under control so you aren't bothered with frequent recurrences. Continue follow up with your providers for your other symptoms.
grace
ps my story is in my profile for the most part.
I'd continue follow up with your specialists because obviously you have a lot going on and they just haven't put it all together yet from the sounds of it.
I'm guessing your doc said the virus was active due to the + igm - that's not really helpful to say that. In fact the igm should've never been drawn on you at all.
Hopefully being on suppressive therapy with valtrex keeps the herpes part of everything under control so you aren't bothered with frequent recurrences. Continue follow up with your providers for your other symptoms.
grace
ps my story is in my profile for the most part.
Grace,
Thank you for your prompt attention!
Here are my #s: HSV 1 IGG 4.96
HSV 2 IGG 3.23
HSV IGM detected
I don't know what that means, but I would like to know so I can take better care of myself.
Last year I was evaluated and tested by a neurologist, who found nothing wrong with me, except for 'something inside my left ear' ( he didn't specified what) but I suspect it was a herpes outbreak. About 40 blood tests were performed then (except for herpes).
I haven't check with rheumatology yet.
Can you please tell me a little bit about your story, so I have a better idea of whom am I talking to?
Thanks,
Venus2000
Thank you for your prompt attention!
Here are my #s: HSV 1 IGG 4.96
HSV 2 IGG 3.23
HSV IGM detected
I don't know what that means, but I would like to know so I can take better care of myself.
Last year I was evaluated and tested by a neurologist, who found nothing wrong with me, except for 'something inside my left ear' ( he didn't specified what) but I suspect it was a herpes outbreak. About 40 blood tests were performed then (except for herpes).
I haven't check with rheumatology yet.
Can you please tell me a little bit about your story, so I have a better idea of whom am I talking to?
Thanks,
Venus2000
lysine isn't worthwhile for herpes. Sorry to hear that you wasted your money on it. Most folks get more than enough lysine naturally in their diets as it is.
If you had a blood test done - can you get the results of it and post the numerical values here please - ie hsv1 igg 5. 9 and hsv2 igg 5. 7 or whatever they are? I can better help you if I can see the actual results.
I recommend returning to the dermatologist for further work up with all your rashes and such. It sounds like far more than just herpes going on ( as if herpes wasn't enough along with everything else you have going on ). Have you had a full work up from other specialities like rheumatology and neurology too?
grace
If you had a blood test done - can you get the results of it and post the numerical values here please - ie hsv1 igg 5. 9 and hsv2 igg 5. 7 or whatever they are? I can better help you if I can see the actual results.
I recommend returning to the dermatologist for further work up with all your rashes and such. It sounds like far more than just herpes going on ( as if herpes wasn't enough along with everything else you have going on ). Have you had a full work up from other specialities like rheumatology and neurology too?
grace
Grace,
thanks a lot for responding!
This is my story:
I had a vertigo, which sent me in a coma to the emergency room in 2005. Along with the vertigo, my whole left side of the body was numbed or paralized. I was summited to several tests and everything came out negative. after going through another extensive serie of tests at an ENT clinic, I was diagnosed with Meniere's disease. The Drs. have been treating me with all kinds of diuretics and vertigo medicine. Nothing seemed to work. I started reading articles online about Meniere's since I've been feeling worse and worse. The list of symptoms is endless. (I'm home dissabled since summer of last year).
I read somewere that some Meniere's patients were treated with Acyclivir. I asked my Dr. for it and he denied. Then I traveled overseas and bought it over the counter. I took a 14 days treatment, and for the first time in the last three years I felt well. I thought I was cured, but about 21/2 weeks after feeling well, I got a horrible brakeout on my buttock and my head, and the flu-like symptoms, the incontinence, confussion, heavy pressure of the skin of my abdomen and of my brain,fever, unbelievable muscle pain,
infection of my left eye & sinus, throat, and esophagus, came back.
Then I went to my PCP and demanded to be tested for all kinds of herpes.
That's how I was diagnosed.
I was referred to a skin Dr. who prescribed Valtrex 500mg once a day. Since I felt terrible I take 2 instead, this days I'm feeling a little bit better. But I went to see my GYN 2 days ago, and she said I'm active. The test shows a new brakeout. And I keep getting the rashes on my scalf. I presently have the pressure on my abdomen and my brain.
I just ordered some natural supplement online, called Lysine since I'm desperate, not knowing what to do or what to expect. I fear encephalitis.
Any suggestion?
Thank you,
Venus2000
thanks a lot for responding!
This is my story:
I had a vertigo, which sent me in a coma to the emergency room in 2005. Along with the vertigo, my whole left side of the body was numbed or paralized. I was summited to several tests and everything came out negative. after going through another extensive serie of tests at an ENT clinic, I was diagnosed with Meniere's disease. The Drs. have been treating me with all kinds of diuretics and vertigo medicine. Nothing seemed to work. I started reading articles online about Meniere's since I've been feeling worse and worse. The list of symptoms is endless. (I'm home dissabled since summer of last year).
I read somewere that some Meniere's patients were treated with Acyclivir. I asked my Dr. for it and he denied. Then I traveled overseas and bought it over the counter. I took a 14 days treatment, and for the first time in the last three years I felt well. I thought I was cured, but about 21/2 weeks after feeling well, I got a horrible brakeout on my buttock and my head, and the flu-like symptoms, the incontinence, confussion, heavy pressure of the skin of my abdomen and of my brain,fever, unbelievable muscle pain,
infection of my left eye & sinus, throat, and esophagus, came back.
Then I went to my PCP and demanded to be tested for all kinds of herpes.
That's how I was diagnosed.
I was referred to a skin Dr. who prescribed Valtrex 500mg once a day. Since I felt terrible I take 2 instead, this days I'm feeling a little bit better. But I went to see my GYN 2 days ago, and she said I'm active. The test shows a new brakeout. And I keep getting the rashes on my scalf. I presently have the pressure on my abdomen and my brain.
I just ordered some natural supplement online, called Lysine since I'm desperate, not knowing what to do or what to expect. I fear encephalitis.
Any suggestion?
Thank you,
Venus2000
How did they diagnose you as having herpes? Do you treat your herpes at all now that you are diagnosed?
hpv and uterine cancer have nothing to do with herpes.
grace
hpv and uterine cancer have nothing to do with herpes.
grace
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You are reading content posted in the Herpes Community
Herpes spreads by oral, vaginal and anal sex.
Herpes sores blister, then burst, scab and heal.
STIs are the most common cause of genital sores.
Millions of people are diagnosed with STDs in the U.S. each year.
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
