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How many Chiari 1 Malformation patients have hydrocephalus?
The Nero Doctors that read these reports and MRI films had never mentioned to me that I may have had a cerebral hemorrhage (hydrocephalus) or still do, that appears suggestive on this MRI report.. When I showed my neurosurgeon the MRI pictures of the cerebral hemorrhage he dismissed it for being a MRI scan diffraction. and only ordered a new neck MRI. My PCP had to call him several times to get the right CINE MRI of the BRAIN on the referral to be done next week. After two years this is progress after they got my Dr Rosner letter that stated "topical Chiari 1 Malformation" . My neurosurgeon told me that is highly controversial as he gave me back the pictures with his hands shaking so bad like he could not hold a knife much less anything else.
MRI Report states:
"An axil GRE was also obtained and this shows no low signal suggesting residua from prior intrapronchyrlal hemorrhage"
A good Poll question would be How many Chiarians have hydrocephalus ? and do they have Hypothyroid problems?.
MRI Report states:
"An axil GRE was also obtained and this shows no low signal suggesting residua from prior intrapronchyrlal hemorrhage"
A good Poll question would be How many Chiarians have hydrocephalus ? and do they have Hypothyroid problems?.
Thanks for your info. Now I am on a mission to find out if I do have hydrocephalus or a intraparenchymal hemorrhage or both !
cerebral hemorrhage (or intracerebral hemorrhage, ICH), is a subtype of intracranial hemorrhage that occurs within the brain tissue itself. Intracerebral hemorrhage can be caused by brain trauma, or it can occur spontaneously in hemorrhagic stroke. Non-traumatic intracerebral haemorrhage is a spontaneous bleeding into the brain tissue.[1]
A cerebral hemorrhage is an intra-axial hemorrhage; that is, it occurs within the brain tissue rather than outside of it. The other category of intracranial hemorrhage is extra-axial hemorrhage, such as epidural, subdural, and subarachnoid hematomas, which all occur within the skull but outside of the brain tissue. There are two main kinds of intra-axial hemorrhages: intraparenchymal hemorrhage and intraventricular hemorrhages. As with other types of hemorrhages within the skull, intraparenchymal bleeds are a serious medical emergency because they can increase intracranial pressure. The mortality rate for intraparenchymal bleeds is over 40%
cerebral hemorrhage (or intracerebral hemorrhage, ICH), is a subtype of intracranial hemorrhage that occurs within the brain tissue itself. Intracerebral hemorrhage can be caused by brain trauma, or it can occur spontaneously in hemorrhagic stroke. Non-traumatic intracerebral haemorrhage is a spontaneous bleeding into the brain tissue.[1]
A cerebral hemorrhage is an intra-axial hemorrhage; that is, it occurs within the brain tissue rather than outside of it. The other category of intracranial hemorrhage is extra-axial hemorrhage, such as epidural, subdural, and subarachnoid hematomas, which all occur within the skull but outside of the brain tissue. There are two main kinds of intra-axial hemorrhages: intraparenchymal hemorrhage and intraventricular hemorrhages. As with other types of hemorrhages within the skull, intraparenchymal bleeds are a serious medical emergency because they can increase intracranial pressure. The mortality rate for intraparenchymal bleeds is over 40%
I did have the CM surgery and developed hydrocephalus about 8-9 months later. The symptoms that returned were the same that I had prior to the surgery. The headaches became worse as time progressed and had to go to the ER one night. They did a CAT and discovered the hydro in spite of the CM surgery. My guess is with the tonsils out of the way (mine were 18 mm) the floodgates became open and the CF fluid filled the sacs in the brain.
My problem was getting the NS that did the CM surgery to believe I had hydro. A letter writing, phone call battle began between my pcp, NL and the NS. The NS would not recognize the hydro. My NL finally put me in touch with another NS that installed a VP shunt in my brain to regulate the CF flow. Symptoms disappeared and life became normal.
On every MRI, CAT that has been performed on my brain, the radiologist has noted a chronic bleeding in the front of the brain. What this is, I do not know as it has not been persued by docs yet and I have not pushed, other items need attention right now.
The hydro can easily be picked up on a CAT and more specifically on an MRI. It just takes the right person, radiologist, NL or NS to read the reports carefully.
Wish you the best.
My problem was getting the NS that did the CM surgery to believe I had hydro. A letter writing, phone call battle began between my pcp, NL and the NS. The NS would not recognize the hydro. My NL finally put me in touch with another NS that installed a VP shunt in my brain to regulate the CF flow. Symptoms disappeared and life became normal.
On every MRI, CAT that has been performed on my brain, the radiologist has noted a chronic bleeding in the front of the brain. What this is, I do not know as it has not been persued by docs yet and I have not pushed, other items need attention right now.
The hydro can easily be picked up on a CAT and more specifically on an MRI. It just takes the right person, radiologist, NL or NS to read the reports carefully.
Wish you the best.
I would think that any so called prior "intrapronchyrlal hemorrhage" would need to be investigated further to see what area of the brain may be effected, and see if it is still presenting any present or future dangers ? Hopefully the two sets of MRIs (07& 08) I sent to the Medical Center that will be doing my Cine MRI csf flow study next week can make some sense of this.
Since a head / neck trauma was involved I would not doubt that that both the intrapronchyrlal hemorrhage and Chiari csf blockages started at the same time. I am just so surprised that no doctors have ever mentioned to me of this being on the 08 MRI report! From what I understand a intrapronchyrlal hemorrhage is a medical emergency that should not be taken so lightly.
Thanks Shane and others.
Since a head / neck trauma was involved I would not doubt that that both the intrapronchyrlal hemorrhage and Chiari csf blockages started at the same time. I am just so surprised that no doctors have ever mentioned to me of this being on the 08 MRI report! From what I understand a intrapronchyrlal hemorrhage is a medical emergency that should not be taken so lightly.
Thanks Shane and others.
It's possible to have both.
So much of reading an MRI is a talent and skill; I'm sure the right reader can catch the difference.
So much of reading an MRI is a talent and skill; I'm sure the right reader can catch the difference.
On a MRI how can tell Hydrocephalus from what this MRI report says?
"An axil GRE was also obtained and this shows no low signal suggesting residua from prior intrapronchyrlal hemorrhage"
Can both occur at the same time? Or one appear to be the other on the MRI?
"An axil GRE was also obtained and this shows no low signal suggesting residua from prior intrapronchyrlal hemorrhage"
Can both occur at the same time? Or one appear to be the other on the MRI?
What ever fluid it is I hope they figure out with the CINE MRI CSF flow study. I have had what ever it is for 2 years with a feeling of being drunk and a severe hang over all the time amongst 90 % of all chiari symtoms.
Sorry, I accidently hit "Post Comment".
Cerebral hemmorrhaging means that your brain was bleeding - from what you put down, it's probably stopped, but you may have scar tissue in your brain pan that is showing up in the scans. Nothing to overly worry about unless it starts bleeding again.
Hydrocephalus is an access of spinal fluid in the skull. If the CSF flow can't go anywhere it can continue to grow and cause serious problems, however, it's a fairly simple operation to put in a shunt to relieve the pressure.
Cerebral hemmorrhaging means that your brain was bleeding - from what you put down, it's probably stopped, but you may have scar tissue in your brain pan that is showing up in the scans. Nothing to overly worry about unless it starts bleeding again.
Hydrocephalus is an access of spinal fluid in the skull. If the CSF flow can't go anywhere it can continue to grow and cause serious problems, however, it's a fairly simple operation to put in a shunt to relieve the pressure.
Oh, and Bobdiode, there's a differance between hydrocephaluc and cerebral hemmorrhaging.
I ran across this story about an EXTREME case of hydrocephalus. It's amazing how fragile yet at the same time sturdy the human body can be.
http://www.theglobeandmail.com/news/technology/science/article771044.ece
http://www.theglobeandmail.com/news/technology/science/article771044.ece
Thanks for your comments,
If you do have hydrocephalus it can put pressure on your pituitary gland that supplies your thyroid with the necessary hormones to make it produce TH3 and TH4. If your prematurity gland is under high pressure from the CSF flow it can give the thyroid either the wrong signals or supply the the thyroid with with a minimal hormones or response if any! The major problem is the CSF leaking into your brain.
If you do have hydrocephalus it can put pressure on your pituitary gland that supplies your thyroid with the necessary hormones to make it produce TH3 and TH4. If your prematurity gland is under high pressure from the CSF flow it can give the thyroid either the wrong signals or supply the the thyroid with with a minimal hormones or response if any! The major problem is the CSF leaking into your brain.
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